Clinical Care Schedule For Newborns To 5 Year Olds With Cystic Fibrosis
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1
2CLINICAL CARE SCHEDULE
FOR NEWBORNS TO 5 YEAR OLDS WITH CYSTIC FIBROSIS
Clinical care guidelines for the management of both infants and preschoolers with cystic fibrosis have been published.
(1, 2)
This table combines the recommended care management schedules from those publications. Please note while this schedule
is intended as a guide, individual circumstances will dictate the timing and care provided.
1
Infant Care Guidelines:
Cystic Fibrosis F, Borowitz D, Robinson KA, et al. Cystic Fibrosis Foundation evidence-based guidelines for management of infants with cystic fibrosis.
The Journal of pediatrics. 2009;155(6 Suppl):S73-93.
2
Preschool Guidelines:
Lahiri T, Hempstead SE, Brady C, et al. Clinical Practice Guidelines From the Cystic Fibrosis Foundation for
Preschoolers With Cystic Fibrosis. Pediatrics. 2016;137(4).
KEY
Do
Consider
Attempt
Perform Quarterly
Perform at one of these visits
DATE DONE
EVERY
1WK
2-3
DAY
LATER
24-48
MO.
OF
2
3
4
5
6
8
10
1
2
3
4
5
AGE AT VISIT
HOURS
OR
IN THE
SWEAT
MO
MO
MO
MO
MO
MO
MO
YR
YR
YR
YR
YR
AGE
OF DX
2ND
TEST
1 MO
YR OF
LIFE
CARE ISSUES
Discuss diagnosis
NUTRITION
Assess weight gain,
Start PERT and
caloric intake, and
CF specific
PERT dosing and CF
vitamins
specific vitamin use
Encourage human
milk feeding
Salt supplementation
1/8 tsp salt
Increase to
Continue supplement
1/4 tsp salt
History and
physical with weight,
length, OFC
PULMONARY
Airway clearance,
Teach &
Assess annually and
review airway
initiate
review technique
clearance techniques
airway
clearance
Introduce chronic
Dornase Alfa and/or
Hypertonic Saline
Seasonal influenza
vaccination
*Annual labs include: Vitamin levels A,D, E, prothrombin time, serum electroytes BUN creatine glucose, complete blood count, AST/ALT/GGT/ Bili, albumin, ALP
CONTINUED ON NEXT PAGE
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