Clinical Care Schedule For Newborns To 5 Year Olds With Cystic Fibrosis Page 2
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2CONTINUED FROM PREVIOUS PAGE
KEY
Do
Consider
Attempt
Perform Quarterly
Perform at one of these visits
DATE DONE
EVERY
1WK
2-3
DAY
24-48
LATER
MO.
OF
2
3
4
5
6
8
10
1
2
3
4
5
AGE AT VISIT
HOURS
OR
IN THE
SWEAT
MO
MO
MO
MO
MO
MO
MO
YR
YR
YR
YR
YR
OF DX
AGE
2ND
TEST
1 MO
YR OF
LIFE
TESTING AND ASSESSMENTS
Sweat test and
All 1st °
genotyping confirmed
siblings
documentation
Annual labs*
NUTRITION/GI
Pancreatic functional
status testing
Abdominal pain
assessment
Set energy and
caloric goals and
assess progress
PULMONARY
Respiratory culture
Chest radiograph
or CT
Spirometry
BEHAVIOR
Assess ability to
sustain daily care
Assess for presence
of mealtime behavior
Anticipatory
Anticipatory
Anticipatory
challenges and
guidance
guidance
guidance
provide proactive
behavioral assistance
EDUCATION
Teach and assess
infection control
Fill out
“who to call-
where to go” sheet
Consent and
document CFF
patient registry
Discuss clinical
research
Tobacco smoke
exposure
avoidance education
Genetic
counseling
*Annual labs include: Vitamin levels A,D, E, prothrombin time, serum electroytes BUN creatine glucose, complete blood count, AST/ALT/GGT/ Bili, albumin, ALP
For questions, call
1-800-FIGHT-CF
(800-344-4823) or email .
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