Love Letter To Normals Sample


By Claudia Marek
Here is my letter written to explain to family and friends what it's like to have fibromyalgia.
It won't work miracles: it's hard to understand our illness from the outside looking in. But it
is a start and can open the door to important dialogues. You are all welcome to use it, either
as is, or as a basis for writing your own. Remember that you have a responsibility to tell
those close to you what is wrong and communicate as clearly as you can how you feel and
what you need. The best time to do that is when you are not upset!
Fibromyalgia isn't all in my head, and it isn't contagious. It doesn't turn into anything serious
and nobody ever died from fibromyalgia (thought they might have wished they could on
really awful days!!) If you want to read articles or books about fibromyalgia I can show you
some that I think are good. If you just want to learn as we go along, that's fine too. This is
definitely going to be a process. The first step is for you to believe that there is an illness
called fibromyalgia and that I have it. This may sound simple, but when you hear about my
symptoms I don't want you to think I'm making this all up as I go along.
Fibromyalgia is a high maintenance condition with lots and lots of different kinds of
symptoms. There's no way to just take a pill to make it go away, even for a little while.
Sometimes a certain medication can make some of my symptoms more bearable. That's about
the best I can hope for. Other times I may take a lot of medication and still won't feel any
better. That's just the way it goes. I can't control how often I feel good or when I'm going to
feel terrible. Lots of people have been cutting new drugs advertisements out of magazines for
me and I appreciate the thought, but I've seen them too. Look at the list of side effects and
the few symptoms they help in return. Even in the best studies those expensive compounds
didn't help over half the people who tried them. No matter how happy the people in the
pictures look, there's still no miracle drug available.
There's no cure for fibromyalgia and it won't go away. If I am functioning normally, I am
having a good day. This doesn't mean I'm getting better -- I suffer from chronic pain and
fatigue for which there is no cure. I can have good days, several good weeks or even months.
But a good morning can suddenly turn into a terrible afternoon. I get a feeling like someone
has pulled out a plug and all my energy has just run out of my body. I might get more
irritable before these flares, and suddenly get more sensitive to noise or just collapse from
deadening fatigue. Weather changes can have a big effect on how I feel. Other times there
may be no warning, I may just suddenly feel awful. I can't warn you when this is likely to
happen because there isn't any way for me to know. Sometimes this is a real spoiler and I'm
sorry. The sadness I feel for what my illness does to those around me is more than I can
easily describe. You may remember me as a light-hearted fun loving person -- and it hurts
me that I am no longer what I was.
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